Thursday, September 22, 2011

Happy Birthday to me

One year ago, a few hours before my stem cell transplant, I felt like this.
Yesterday, when Brett asked me how it felt to be a day away from Day +365, the best I could come up with was, "It doesn't feel like anything."  Which, admittedly, isn't very enlightening or inspiring; in fact, it is a little disappointing.  How typical of me.

I tried to give it some thought today, when I wasn't busy doing other things to try to distract myself from having to give it some thought.  And I came up with two things.  The first thing is, I don't really measure my progress like that.  I'm certainly not nay-saying milestones.  I like a good milestone as much as the next guy.  But my milestones are more about everything except the transplant.  For example, I've seen loved ones get married.  I've seen my daughter learn to tell stories, draw, write, and argue with me WITHOUT END like she's Clarence Darrow or something.  I may actually finish reading the Song of Ice and Fire series.  I saw friends' babies born.  I've made new friends.  Even things like, "Wow, I thought I'd already laughed as hard as I could laugh," or "Ok, this was definitely the worst I've ever felt in my life" are points in time that are significant to me.  I swear, I come to a new milestone almost every day.  So I guess each new day is a milestone; and that's no different from today.

Now, if I had overslept or something a year ago and somehow missed my transplant, I realize none of these milestones would have happened.  This brings me to the second thing: gratitude to my donors.  Some amazing mothers in hospitals both here and halfway across the world agreed to donate their child's umbilical cord to a public cord bank.  They could have banked them for themselves, or said, "That's weird.  No way." but they didn't.  And they won't ever really know that they gave someone at least a whole year of a ridiculous amount of milestones.  I hope somehow, in some way, I'll be able to pass along a tiny portion of their generosity.  This gratitude extends to all of you that joined the donor registry with yourself or your babies' cords.  I hope you realize what and incredible, stupendous act of generosity that is.  It is! 

Oh, and what is a birthday party without games?!  I been wanting to do this for awhile, and today feels like the right day to do it.  This game is called, "Everything You Wanted to Know About Having Cancer*" (*but were afraid to ask).  For the next week or so, I'll be in Seattle for my 1-year follow-up appointments.  During that time, you can ask me absolutely anything about leukemia, transplant, this blog, etc.  And I will answer all questions in a post after I get home from Seattle.  And I mean anything!  Like, "What's your favorite narcotic?"  "Did you write a will?"  "What does it feel like to get chemotherapy and/or lose all your hair?"  "Do you think your boundless positivity and consistently upbeat attitude has helped you?"  I promise I will answer as truthfully as I can.  You can email me questions (jessiequinn at gmail dot com).  Or, you can ask in the comments section.  I can't think of a way for you to remain anonymous to me (if you can, great), but I won't publicize who asked what question.  Nor will I hold it against you or think you're strange for asking.  So this game requires audience participation, people!!  If no one asks anything, I'll be forced to blog about the same old "my blood counts are up/down/the same" "I think I'm relapsing/oh wait, I'm not" "I have another rash" for the foreseeable future.   So make with the questions.  It will be fun...ish.

Expect updates while I'm in Seattle, but also be prepared not to actually see any.  I really will try, though.  I'm going to go ahead and put it out there:  I'm as nervous as a cat in a room full of rocking chairs, but I'm looking forward to it at the same time.  Onward and upward, as they say.  But mostly onward, in this particular case.

Love and love and love and sincerest thanks to everyone who has been with me through this.  You have really literally been with me.  I can feel it every single time I have to summon up my determination to get through each obstacle and make my way to the other side of every fearful moment.  I appreciate it with all my heart.                                  

5 comments:

LjW said...

You rock, hard, birthday Mama.
You may want to consider just nodding and agreeing with that little attorney at large lest you end up bursting some part of your lovely brain.
Good luck in Seattle. I will be sending some love and questions along.
Big hugs to you all.
Lady Ward

Nichole said...

Congratulations Jessie!! I say celebrate whatever the heck you want because you deserve it!!! Chris, Chewy and I will be sending our support and positive energy your way while you are in Seattle.

allyschad said...

Thank you for your whit. It makes reading a blog about cancer so much more enjoyable. Happy 1st Birthday! I love you, corri

April said...

Grats Jess! You asked for questions so I guess I'll try to come up with one...

How much physical paid has all of the different procedures caused you and how did you manage not to give into the pain and give up?

April said...

physical pain*

Post a Comment