Thursday, October 7, 2010

So you have a rash, nausea, diarrhea, heart burn, insomnia, fatigue and your whole body hurts. You’re doing great!


That title pretty much sums up what the doctors told us this morning.  And, in the big picture, it is true.  While Jessie is miserable with all those symptoms, things are progressing fairly well.  Since she hasn’t had a fever in several days, they took her off the steroids and there has been no sign of an infection based on the cultures they have done.  Mucositis is gone for the most part and Jessie has been removed from intravenous nutrition now that she can swallow again.  Eating is pretty challenging with all her other symptoms, but she is working at it and is making a bit progress each day.  Jessie has also been able to go on a walk each day since her fever went away.  Her achy body is likely due to nuepogen, which is a daily shot she receives to boost the neutrophils produced in her body.  The rash which covers her hands, arms, and feet is a possible side effect from a prophylactic antibiotic and they will continue to monitor it and treat it if necessary.  Her blood counts have been pretty stable but still low.  That’s pretty much it.  Despite how Jessie is feeling, this is all pretty good news on Day 15.  Let’s  hope for more good news coming our way. 

5 comments:

Tech Writer John said...

Good news, our thoughts are with you all!

Maggie Williams said...

It is hard to deal with all this, I am sure. We are most empathetic. We would like you to know that we did find a costume with our Halloween things, one that could fit Topo and that involves a guitar.

Keep up the good work--growing the good cells and resting up.

Unknown said...

Thanks for the update! You are in my thoughts and prayers! Love to all of you!

Unknown said...

Thanks for the update Brett. We all hope to hear of her continued improvement. We are all thinking of you.

LjW said...

Keep on rockin' it JQ!! You guys are incredible.

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